TREVOR

I just found out today that Trevor is suspected of having Adrenoleukodystrophy. He had an MRI 1 1/2 years ago, and at that time we were told by the attending physician that everything looked normal. Trevor has had a lot of bowell problems, during a routine follow-up with his gastrointestinal specialist (Dr. Kaddu)the Dr. mentioned his MRI and asked if we had followed up on his adrenoleukoldystrophy concern. I told him I was never informed of that diagnosis. Needless to say I am very upset. I am scheduling another MRI for Trevor to see if there is any change in his brain. http://www.ninds.nih.gov/disorders/adrenoleukodystrophy/adrenoleukodystrophy.htm